Download Ebook BookI Am Somebody Bringing Dignity and Compassion to Alzheimer Caregiving

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Read I Am Somebody Bringing Dignity and Compassion to Alzheimer Caregiving

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The challenges of Alzheimer’s disease—the physical burdens, financial costs, emotional turmoil and family strife—can reduce our loved one to a “he” or a “she,” a person almost devoid of humanity. As caregivers, our lives revolve around the basics, like doctor’s appointments and dressing, feeding and cleaning up after our loved ones. Their life becomes our life; our life becomes theirs. But who are they now that this disease has taken over And just as important, who are we In I Am Somebody: Bringing Dignity and Compassion to Alzheimer’s Caregiving, dignity-in-caregiving advocate Frances H. Kakugawa presents a new vision of caregiving.I Am Somebody is a reminder that both loved one and caregiver deserve compassion, respect and a life with dignity. As a caregiver for her Alzheimer’s-afflicted mother for many years, Kakugawa often felt embattled and at odds with her mother. Through writing, she had a revelation. “I wrote a poem, from my mother’s point of view, imagining what she would say: ‘When I soil my clothing, or do something absurd, / Do not tell me, “Why didn’t you” / If I could, I would.’ This idea came to haunt me and became my mantra whenever I wanted to shout in exasperation, ‘Why did you’ or ‘Why didn’t you’”In poetic voice, Kakugawa explored further what her mother might have wanted to say: “Speak to me, for I am still here. I understand hugs and smiles and loving kindness. Speak to me and not around me. I am not a she or her or even a room number.” Having put herself into the position of patient—a label she eschews for the negative attitudes it engenders—Kakugawa discovered her attitude toward caregiving had shifted. “Once I embraced this new person who was evolving before me, once I let go of the person I wanted my mother to be and instead let her be herself, caregiving turned into a freer flowing river.”I Am Somebody offers guidance in using poetry and journaling to become a more compassionate caregiver. It is a therapeutic tool providing advice and insights in the form of poems and journal entries from twelve individuals—men and women with a diverse range of cultural backgrounds, ages, faiths and education who have cared for mothers, fathers, wives and husbands—who have made this difficult journey. Kakugawa and her fellow caregivers paint a vivid picture of the caregiving journey and all of the attending struggles, triumphs and deepest fears. I Am Somebody gives voice to the caregiver experience, allowing unspoken feelings to be expressed and caregivers the space to explore what their loved ones might say, if they could. Caregivers will find this assemblage of experiences resonant, while those who are more peripherally involved, such as non-caregiving family members and medical professionals, will gain new insight into the daily caregiving experience. Kakugawa opens each chapter with advice directed toward both caregivers and those in their support circle.I Am Somebody is Kakugawa’s fourth book on caregiving. Her previous works include Mosaic Moon: Caregiving Through Poetry, Wordsworth Dances the Waltz, a children’s book about families living with grandparents with Alzheimer’s and other dementia-related illnesses (a Mom’s Choice Award® Silver recipient), and Breaking the Silence: A Caregiver’s Voice. How Children Become the Black Sheep of the Family ... I hear this expression all the time. I hear it used in the sentence well he always was the black sheep of the family and I hear it used in the first person such ... A nursing home nightmare The Caregiver Space This is my second open letter. You can read the first here. So I sent that letter telling of my Mothers plight (and mine) as an attempt to raise a warning flag ... Home Instead Senior Care - What people say about us - The ... I am writing to you to say thank you to you and all of your team for the care and support you have given my mother over the last few months. The care has been of a ... KPAM-AM - Terry Boyd's World Lisa Engelman has cancer. Her son Luke created a lemonade stand to help his family pay for the treatments. Here is their story from KOIN. Click here to find out how ... What if My Mother or Father Dies Before We Resolve our ... What if My Mother or Father Dies Before We Resolve our Relationship? I used to worry that my mother or father might die before we ever have any kind of ... SBC BLOG - Baptist Press ST. LOUIS (BP) -- Baptist Press is live blogging the SBC annual meeting in St. Louis. Updates can be read here at our Twitter account (Twitter.com/BaptistPress) or ... Dementia Care Dos and Don'ts: Dealing with Dementia Mid-to-late stage dementia and Alzheimers disease often presents challenging behavior problems. The anger sadness paranoia confusion and fear that people with ... Alzheimer's disease and dementia are different - Mayo Clinic My sincere appreciation to all of you who have posted a comment or two on this new blog I am elated by the rapid interest! Your exchange of stories ideas and ...
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